Counting Down!

We are counting down the days until our trip to see Dr. Jyonouchi at UMDNJ's Pediatric Center for Rare & Complex Disease in Newark, NJ.  We will be leaving on Wednesday.  I am so excited, but I am pretty nervous at the same time.  We are praying that Dr. J can give us some insight on what to safely feed Braxton.  While he is doing "okay" these days, our daily lives are still interrupted by vomiting.  As an example, we had a great day today.  We went downtown in the city we live to shop and stroll around outside.  We were there for about two hours before the vomit attack began - leaving a puddle on the street in front of us.  It is 7:10 pm and Braxton has had a complete clothing change 3 times since he got up.  He had to have his bath early because the vomit had seeped through his clothing and his skin was damp all over.  I am grateful, however, that we are no longer allowing these issues to completely isolate our family from the rest of the world.  If Dr. J can assure us that these vomiting episodes aren't hurting him, I can live this way - our family can adapt.  I am so afraid that there is constant damage happening to his insides, however.  I am praying she can give us some answers!  We are so grateful to have the opportunity to see a doctor with such extensive knowledge on FPIES.  We are counting down the days...